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Monday 16 August 2010

Back to Not Eating

so before Lewis was born i heard the phrase 'CDH is a rollercoaster' a lot, well isn't that just a huge understatement, just wish things could be easy for once, afer his wee spell of eating everything, we thought that would be it, surely now he knows he can enjoy it he won't look back, WRONG!! he got my cold, he only got it mild but it was enough to put him off his food....he stopped eating and hasn't eaten since, he's not interested whatseover, back to going mad everytime you dare put somethin near him.
He's a bit more back to his old self now, so he's getting there slowly but surely
before we left the hospital we were told the community nurses would be out 2 days later, but nope they never came and that was nearly 3 weeks ago now, he also never gained any weight in a month, but we put that down to he was still being sick then he was in for his operation and he probably had put on weight but with all that he'd lost it again,
at the minute he's still quite uncomfy when he gets a lot of milk put down his tube, so we're sort of been bordering going back on 3 hourly feeds, but managing to JUST get by without doing that for now.

we're off on saturday morning to go meet some lovely ladies i met through SANDS just after losing Nathan, and we pick our new shiny car up on thursday can't wait :)

1 comment:

Jaime's World said...

Hayley,
I'm so sorry! Yep, the roller coaster stinks! When we were in the NICU I changed my cell phone ring tone to the song "Roller Coaster" and have currently kept it as my ring tone for his physicians ever since.
Jaime's been ill and has hardly eaten much, lately, too. Poor little ones! (Does Lewis let you brush his teeth? Jaime hated it, then started letting me do it, and is now back to not letting me do it at all. He gags all of the time now, it's so bizarre.)
Hoping for better days ahead! Hang in there Momma, just try to look at the positive...he's come so incredibly far!
Hugs to all of you!

 

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