well the good news is Lewis got home on the 28th July the bad is he's still been showing discomfort etc, he's miserable all the time and still has the runs poor wee thing, so he's being bothered by the top (teeth) middle (tummy) and bottom, he just moans all the time and randomly screams here and there, all through the night as well, just want to take him back and tell them to undo everything they done so i can have my happy smiley little boy back, hate seeing him upset and miserable all the time xx
we also have other good news on the Lewis front, since a week ago today he has been eating, and seems he just wants everything in sight, even though he's not eating very much he really goes for it when he does, and he's now decided he does like the little yoghurts after all and can devour half of 1 of the little pots, all this off a spoon as well, so suddenly and out the blue, he used to just go nuts whenever a spoon went near him or whenever food went near him, so thinking it was just a 1 off all week but he's eaten somethin everyday for a week, he's only taking like a teaspoon all in then he's knackered but it is hard work for him having to use muscles he's never really used before, so hopefully with some more practice every day he'll get better and start eating more.
Even more proud of him he's been through so much, he's just my little hero :0)
Happy birthday
1 month ago
3 comments:
Sorry to hear, Lewis is still having pain! :(
Thrilled to hear about his eating, though! That's AMAZING! A teaspoon here and there is AWESOME, truly it is! Hoping that trend continues!
Hugs to all of you!
Sheryl
Hey Hayley - I'm Katie, Max's mum and I just wanted to say thanks for leaving your comment, it was lovely to read. The report was not that accurate (thats the press apparently) and max has a gastrostomy, which I told them but they ommitted to put in. I can see you have Kaden Brown on your blog, I met with him and his mum a few weeks back, was so nice to meet another CDH baby. Glad Lewis is doing so well and looking absolutely amazing. I am also estatic for you that he's eating a bit! Max is very adverse to eating so we can only wait to see if he ever wants to taste things without retching! Take care K xxx
Max's blog page is wwwmiraclemax.blogspot.com - its not great as i'm still trying how to figure out designing it! xx
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