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Thursday 16 June 2011

Update







Lewis is doing great, he has become an expert at walking very quickly due to all his practice, all he done was walk up and down and round and round the living room all day long for a few days, he is great on his feet now and wants to be on them all the time, so we bought him a wee harness so we can keep a hold of him and prevent any bad falls or anything, he doesn't mind being on them, for now lol he does hate being held onto though or holding his hand. So now he's mastered walking he's moved onto his speech which is coming on loads so we're hoping by the time the makaton board eventually comes he won't really need it he does have quite a lot of words but as he was concentrating on the walking he wasn't really using them very often, but now is. He really is our ray of sunshine, he was certainly sent to make us smile, he's just such a good wee boy very sociable and happy. Few things this week about SALT really peed me off but i won't go into that for now as really don't want to rant on here, all i'll say is he's my son and i know what's best for him and i do everything i can for him and no1 will make me feel otherwise and when it comes to decisions about him, then i'll be the 1 making them thanks very much. Just wishing at the moment they would all just go away and leave us be, SALT isn't (in my opinion) doing what she was sent to us to do, but instead poking into other areas that aren't hers to poke into, so wish people would either do their own job or bugger off and leave us be!!
We've been stuck on the feeding at the moment well till now i'm just about to push the last of his bolus witha n extra 5 mils in this 1 taking him to 55mil boluses, he's doing so fab with this, a huge improvement from taking only 30 mils, we've tried this so many times but failed but this time seems to be his time and he's readt this time, so here's hoping we reach our 100 mils goal in a couple months :) and also he is now putting a dummy all the way into his mouth but still not sucking it, just keeps it between his teeth, he gags on it eventually but still it's something. So proud of him for all he has come through and all he has achieved in his 19 months.

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