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Friday 24 June 2011

Positive Hospital Visit

So Lewis had the clinic today, we seen a different consultant, he was FAB, gave us a decent answer to the question we've been asking for nearly a year regarding the mucous Lewis keeps bringing up, didn't fob us off like they always do and after a chat about that and various other issues he has booked Lewis in for 4 small procedures, 1st will be a contrast/swallow study to see how big his stomach is and how much he can handle in it, 2nd will be an 'empty' study to see how quickly his stomach is emptying it as he suffers constipation a LOT and so they have concerns there may be a blockage, 3rd he is having a camera put down into his throat to have a look at his airways and throat and to have a look at that side of the fundoplication as they think it may be a little on the tight side and if it is then they'll have a little wiggle at it to try and loosen it slightly, 4th while he is asleep having the camera procedure they are going to remove his Gtube and replace it with either the mic-key button or the new mini button which they are using more and more, we were hoping he'd have his tube changed today but agreed it best for Lewis to have it done while they have him asleep anyway, so hopefully this will all be in about 3 or 4 weeks time and he should only be in for the day, think i may see how we go about having this man be Lewis's new consultant lol i am so pleased that at last someone has finally listened to our concerns and seemed concerned over it himself and took it upon himself to do what needs to be done for Lewis.
They also seemed a bit concerned about the 'dent' on Lewis's side, where they removed muscle for his repair operation as it seems to be quite deep now so off we went to medical illustration to have photographs of it taking so they can keep an eye on it.
They are pleased with how he's growing and with his weight gain, according to their scales he is now 1 stone 12, but not sure how accurate they are as we always go by the scales at the health visitors and he gets weighed naked there and today he had nappy, jeans and tshirt on but am sure he's not far off it anyway. Oh and as for the feeding we are now at 60 mils twice a day :)
He is not just walking around now, he's running, and also walking outside with his reins on cos am scared of him falling lol, he likes to just walk everywhere it's so good to see, oh and to my absolute horror he can get ALL the way up our stairs, silly daddy left the stair gate open earlier and he was gone just 2 seconds and i found him half way up the stairs, i was horrified BUT on the plus side i don;t have to struggle carrying him and a big bump up the stairs now, so at bedtime when i said time for bed he took himself to the stairs, with me right behind him obviously he got all the way up without any help, he is a little monkey.
I've been really struggling for various reasons lately but Lewis sure was sent to keep me going my little sunshine warrior hero <3

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