well yesterday the lovely lady from the speech and language team came out, i know it sounds confusing saying speech and language when it's not for any of them she comes, it's for the oral aversion/feeding issues, but tbh i'm so disappointed, we've waited 5 months for her coming, in that time i've done so much of my own research, found lots of our own things to try etc, she comes in, tells me everything i know already, tells me to try things we're trying already, tells me we need to cut a night feed, when i was 90% percent back to that already, then says she'll be back in 3 and a bit weeks and we'll do some food play, which we do all the time anyway, then she leaves, ok so what was the point in that, so disappointed, i've just been hanging on for this and for what, for nothing that's what, so what now :( back to feeling stuck at the same point and not seeming to progress, see if i can research some more and find some more things on it i guess, just thought they'd come in maybe once every week or 2 and work a LOT with us in order to actually progress but i guess not so what's the point, maybe i'd be just as well saying forget it and don't come back.
Anyway Lewis's wee tooth is looking mega cute and is coming in more everyday, the child smile women's been in and gave him toothpaste and a toothbrush, though he's got 1 but that was for more of a sensory thing before he got his tooth, and he's actually let me brush his tooth now which is great, he's not eating anything but he is refluxing so just wory about the acid in that getting to his teeth, just wish the appointment for the fundo would hurry up and come through.
We've been to the yearly SANDS balloon release today to put tags on balloons for Nathan and watch the balloons getting released, it' obviously Lewis's 1st one, we didn't make the 1 last year as i had the amnio the day before so was laid up the whole weekend, lovely and emotional as always and Lewis met some of him very fabby SAND's aunties who all think he's just adorable (obviously) lol but great seeing Lewis meeting them, i've known them since we lost Nathan and they all were rooting for him to get through the CDH etc, and he just loved them too, specially their necklaces eek lol just brilliant though :)
Really need to pull my finger out sorting things on the blog out, really want to take down the slideshows that are up and replace them with some other pics, just can't get the time but i'm not complaining, plus i'm so forgetful but that's baby brain and lack of sleep so defo not complaining on that either, lucky Lewis still sleeps through every night lol xx
*****have now done the slideshows at last woohoo, i've never sat down n went through all his pics from birth till now, until tonight, going through them sorting the ones i wanted for the slideshows, just amazing seeing him from day 1 till now, he's car sooooo far in his 7 months, keep saying it but i couldn't be prouder of my gorgeous Sunshine Warrior*****
Happy birthday
8 months ago
No comments:
Post a Comment