Our Little Sunshine's CDH Journey: Still stable

CDH

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when the diaphragm does not fully form, allowing organs to enter the chest cavity preventing lung growth. CDH strikes 1 in every 2500 babies. The cause is not known.

Every CDH baby is different, there is no way to predict the outcome of any patient. Some babies with no diaphragm and little lung growth have survived, while some babies with full lungs do not. These children are very different, requiring different treatments, and varying amounts of medical support.

50% of babies born with CDH do not survive and sometimes the remaining 50% have to overcome very difficult medical complications. Many CDH babies have minor lasting health problems such as feeding aversions, asthma, scoliosis, or short-term oxygen dependency. A small number have major lasting health problems such as ventilator dependency, brain damage, or hearing problems. Many patients have no long-lasting medical problems at all other than a scar from the CDH repair. CDH can occur alone or with other birth defects, and rarely, it occurs as part of a syndrome.

Saturday 14 November 2009

Still stable

Lewis had a stable 1st n 2nd night and been stable inbetween x and doin great peein out almost exact what theyre puttin in x just hate this sittin waitin about till like 12 everyday before allowed to go over and see him x good news is we got a room at the ronald mcdonald house Ricky stayed there last night and when i'm discharged i can go there too x bad news is poor Ricky has a cold so we decided was best for him not to go see lewis as dont want to risk anythin, just means that since he was born Rickys only seen him once for half an hour n has to get by on pics im takin such a shame but for the best x anyway thats nearly 12 now so am off to see my little warrior as we found out his lewis means warrior how appropriate lol x

5 comments:

Anonymous said...: glad hes doin well nd is stable xxx; 14 November 2009 at 11:58
Lewis' Daddy said...: *hands out cigars*

Can't believe he's here at last and I can't believe I've got the bloomin' cold which means I can't see him.

It's such good news that he's been stable and doing everything the doctors and nurses want him to do.

I'm so proud of him and his Mummy.; 14 November 2009 at 13:15
Craig and Kristi Kuehl said...: Thank you for the update! I have been waiting with anticipation...It is so good to hear good news. Continued prayers for the three of you, and continue to keep us posted!; 14 November 2009 at 21:04
Jaime's World said...: So happy to hear that Lewis has been stable! Wishing you many more stable days ahead!!!!
Hugs,
Sheryl; 15 November 2009 at 00:38
Liz and Shane said...: We are glad to hear Lewis is stable. We are praying his lungs are growing and he continues to get stronger.; 15 November 2009 at 03:33