Our Little Sunshine's CDH Journey: Lewis nathan richard boyd

CDH

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when the diaphragm does not fully form, allowing organs to enter the chest cavity preventing lung growth. CDH strikes 1 in every 2500 babies. The cause is not known.

Every CDH baby is different, there is no way to predict the outcome of any patient. Some babies with no diaphragm and little lung growth have survived, while some babies with full lungs do not. These children are very different, requiring different treatments, and varying amounts of medical support.

50% of babies born with CDH do not survive and sometimes the remaining 50% have to overcome very difficult medical complications. Many CDH babies have minor lasting health problems such as feeding aversions, asthma, scoliosis, or short-term oxygen dependency. A small number have major lasting health problems such as ventilator dependency, brain damage, or hearing problems. Many patients have no long-lasting medical problems at all other than a scar from the CDH repair. CDH can occur alone or with other birth defects, and rarely, it occurs as part of a syndrome.

Friday 13 November 2009

Lewis nathan richard boyd

Best can do is a pic of a pic for now xx our beautiful little fighter x so proud of u sunshine xx

14 comments:

Amber said...: congratulations!!!
Praying for your little sunshine!

Amber; 13 November 2009 at 03:16
bobdoble said...: Congrat's on your beautiful little boy! I will pray for your Cherub!!!; 13 November 2009 at 03:25
mum/nana said...: cant wait to see you wee man.welcome to the world sweetheart xxxxxxxxxxxx; 13 November 2009 at 03:41
uncle chris said...: uncle chris is on phone n said he so wants to see you.he is so pleased you are stable wee man.xxxxxxxxxxxxx; 13 November 2009 at 03:44
Reminiscing said...: Congratulations on your new arrival! We'll be thinking about you and praying for Lewis.; 13 November 2009 at 03:52
Liz and Shane said...: congrats! We are praying for Lewis and for you.; 13 November 2009 at 04:34
Anonymous said...: Welcome to the world Lewis.

Congrats to you all

Prayers and thoughts are with you.

Shaz - down under; 13 November 2009 at 05:18
Dawn-Archies-mummy said...: Massive hugs and loads of love and best wishes from all at our special babies xx; 13 November 2009 at 08:49
Anonymous said...: Welcome to the world Lewis :) Congratulations Hayley and Ricky and family xxxxxx Leigh xxxxx; 13 November 2009 at 09:59
Gillian Brown said...: Congratulations!!Welcome Lewis - Keep the good work up!
Love from Aberdeen xx; 13 November 2009 at 12:46
mary said...: Congratulations to you all. Stay strong lil Lewis xxxxx; 13 November 2009 at 13:18
Gabi's Journey said...: Congrats! Welcome to the world sweet angel! Fight a strong fight! You are in my thoughts and prayers!
Joanna(Cherubs); 13 November 2009 at 17:02
Anonymous said...: congrats huni hes beautiful, thinkn bout u all.lots of love

xxxxxxxxx
kelly(orans mummy); 13 November 2009 at 19:02
Anonymous said...: So pleased Lewis is here and is stable. Long may his improvement continue! Really happy for you all Hayley. You are amazing and such a loving and wonderful Mummy. thinking of and praying for you all. Lots of love and give Lewis a little butterfly kiss from me X
Rachel Bass & boys xxxxxx; 14 November 2009 at 11:44

Journey So Far (since diagnosis)

17+3 weeks: Congenital Diaphragmatic Hernia found

18 weeks: CDH confirmed, stomach and part bowels up

24+1: MRI, still stomach and bowels up, liver down

26+1: still stomach and bowels up, LHR=1.3 - 1.5, no visible left lung

28+2: 4d scan, EFW=3lb

30+1: still stomach and bowels up, liver down, LHR=(greater than) 2

34+2: 1st steroids

34+3: 2nd steroids and MRI (get results in 2 weeks) high fluid levels, EFW=5lb 3oz

36+2: still stomach and bowels up, liver down, LHR= 2.2, EFW 6lb 12oz, higher than normal range fluid levels

37+2: final visit to fetal medicine, Fluid levels looking better, EFW 7lb 1oz