Feeling Crap

ok so last night after some reading on the net, i came across another CDH blog and sort of read it from the beginning of their journey, started feeling really hopeful etc the baby was looking 'good' with minimum organs in the chest, lungs growing as well as they could, but then getting nearer the end of the pregnancy everything changed, just about everything was now in the chest and the lungs were doin badly with a really low LHR, it was then it hit me, things can change, no1 told us this, so even though at the minute Sunshine case looks 'ok' with the stomach and part bowel in his chest, therefore not being as bad as it 'could' be, we stupidly thought oh good he has a great chance then, but no, now i'm going to dread every appointment n MRI scan wondering if more has got into his chest and even less room for his lungs, knowing now the organs can just float freely in and out of the chest the whole pregnancy, therefore not knowing how things will be as we get to birth time, i've gone from being scared as hell, to, absolutely terrified, now theres nothin really to hope on and go by for the rest of the pregnancy as we now know it can all change for the worse during the matter of weeks, just want the pregnancy over with now but on the other hand it's the not knowing what will happen when he's born etc so don't feel i want to be in any rush to get to that point.
please be ok little man, you HAVE to be.