Lazy bones

it's 10.10am and my gorgeous lazy bones is still asleep, normally we're up at 8 so he's slept an extra 2 hours, he was awake briefly while i was doing his feed lol he's allowed though he seems to have got a touch of his daddy's cold, it's not as bad as we first thought yesterday but it's still there, i'm feeling it myself, i just hope his doesn't develop and he can get rid of it soon, don't need this hanging over him in the run up to his fundo.

oooooohhhh Lewis has a new word for the last couple days it's....hiya :), he's got a great range of vocabulary for his age :)

the S+L women was here again on wednesday, she was supposed to do some observations of Lewis of the way he is around food etc, but nope never done it, was here like 15 minutes and left, she's lovely though, but i just don't feel like we're getting enough help with this therapy thing but i don't like to complain, so have decided to just wait it out till the end of the month till Lewis gets his Gtube and when he's recovered etc we're going to try and come up with a plan of action, whether that involves S+L or not i don't know, will just have to wait and see if it actually becomes of any help to us or not.

it's been agonising for us to decide whether or not to go ahead with the fundo, the acid in his reflux is well controlled with medicines so he's not in any discomfort, he's ALWAYS happy and smily, so there's no obvious signs that he NEEDS to have the fundo done BUT we know he's aspirating badly, which is dangerous, so on that basis this is why he needs the fundo, all the side effects from it though are what scare me, it could make him miserable and suffer in various ways and we don't want it for that reason, but ultimately it boils down to the aspiration, knowing just how serious that is in that it could be fatal, so Lewis will have his fundo on the 22nd july, to any1 reading this i'd be grateful if you caould send lewis lots of good vibes for a quick recovery and minimum side effects from it :s

while we're there, once he gets his Gtube and we get to speak with the dietician i'm going to see if we can get a feeding pump for the night time, i'd like to try and give him most of his daily calories throughout the night, so that he can be free during the day to actually feel a hunger and gives him the chance to 'eat' just hope they agree, at the moment he's fed every 4 hours, he's getting packed full every 4 hours, he doesn't know what hunger is, never has