so silly me, 4 hourly was going so well that i decided to try and 'push' him into taking a bit more at each feed so we could cut a night feed, nope didn't happen, not only was he refluxing soooo bad, but when i put the amounts back down to bring the night feed back, he wasn't tolerating that either, he was still refluxing so bad, feel sooo bad trying to push him like that and now he's showed me by having to go back to constant 3 hourly (nights as well) when he was doing so well on 4 hourly,
ah well that's the thing with this rollercoaster. trial and error, we won't know how far he'll go until we try, but at least we know he WAS ok on 4 hourly so just need to let him recover and get him back onto it and at least now we know he can't tolerate anymore than that so know not to do it again for a while lol. so back on the 3 hourly and he's doing great, generally he's keeping 3 feeds in a row down, then having a little reflux at the next 1, unless the congestion kicks in then it's not 'reflux' it's thick mucousy secretions.
He still won't eat from a spoon, and i feel limited as to what 'finger foods' we can give him, can't be too sugary, too salty, crumbly where big lumps drop off as he won't swallow that, but yet these are the only type of things we can seem to find, apparently our referral for speech and language got sent somewhere else, but now it's been re referred to the right place, so hopefully we will hear from them really soon, i think having them involved with their expertise will be really helpful to us so just trying to hold on and scrape by till then.
most 6 months old babies are only just starting to spoon feed, Lewis can feed himself lol it's just a case of finding the right things he can have because of the issues he has with eating and swallowing, but it's a start in the right direction, not so long ago he wouldn't even let us so much as touch as his mouth, never mind put anything in it.
anyway onto the brilliant weather the last couple of days, we went and bought Lewis some cute shorts and t shirts and some hats, need to get some more pics to put up lol.
2 comments:
I am sure its all trial and error, there is no book for you to follow! You are doing an amazing job with him! He looks so cute in his new outfit!! :)
oh i feel your pain. I remember those days. I thought it would never get faster. Camden is now eating by syringe through his gtube and takes about 6 ounces in 15-20 minutes. We also found out that he is highly allergic to milk, so while I was blaming everything on reflux, most had to do with that milk in him. Since I have taken all milk out he is a different kid....never retches anymore.
The video below of Lewis blowing bubbles is sooo cute. Camden wont do that, but that is a great sign for Lewis, orally speaking! ((hugs))
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