last public update

i thought i'd close the blog from public with a last post (remember to email me if you'd still like to read it), Lewis is sitting here with me as i type whacking the keys, so think this will take a while lol, he's now 20 weeks and 3 days old and we've been home longer now than he was in the hospital and to be honest all that seems like a distant memory, it's only when we look at his photos that we're right back there by his bedside in NICU for 2 months watching him fight for his life not knowing what each day would bring, looking at him now, apart from the NG tube up his nose you wouldn't even know about his start to life.

well i think we may have missed the diaphragm clinic last month because they never bothered to send us an appointment, also haven't heard from speech and language therapy either and still haven't got to the bottom of the snotty problem,
so we're still on 3 hourly feeds which he's keeping down a lot better except when the snotty issues attack then he vomits lots of yukky sticky snot, he's also still refusing everything orally, when he does decide to take something in his mouth he sits with his look of disgust and refuses to swallow and so just ends up choking on it instead,

so having been abandoned by everyone, i have no idea what to do or try, so looks like we'll always be on 3 hourly tube feeds so annoyed by it all to be honest, as for the snotty problem we've been passed round in circles

apart from all that crap Lewis is well, no other CDH related issues for now so fingers crossed it stays like it.
He's still a very good wee boy, doesn't cry for anything he's always very smiley and laidback and sleeps through the night
It's sooo good to see him coming on and progressing, we bought him a jumperoo, expensive but sooo worth it he loves it and took him all of 5 minutes to figure out he had to jump in it so now he jumps like mad and can turn himself in the seat all the way around and i've had to order a lightweight stroller for him, we made a mistake when buying his pram, it's nice and all but it's so bulky and heavy and a nightmare if i'm on my own and trying to get it in and out of the car, it takes up the whole boot space, i don't think it was designed for car use so we'll just use it for going walks and things and keep the stroller in the car lol

nothing much else to report to be honest life is event free and that's the way we like it
but if anyone has ANY feeding tips whatsoever please email me i'll be forever grateful and i'm willing to try ANYTHING.

i'll finish up with some pics

Lewis the night he was born (his very 1st photo)

the day we brought him home

Superbaby, indeed he is

playing while supervising mummy doing the ironing

and more recently 2 of Lewis in his jumperoo (since had to rearrange the living room to make room for all his toys)