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Tuesday 30 June 2009

Queen Mothers

16/06/09 18 weeks
We took that familiar drive up to Queen Mothers, it's only about half an hour away but felt like hours. Sat waiting for an hour and a half to be seen, sitting dreading the scan wondering what else it would turn up etc, but got to the point we sat that long we couldn't wait to get it over with.
The scan confirmed left sided CDH, the stomach and part of the bowels are definitely in his chest, from where she was pointing to the kidneys we think they're out of his chest and that was all she could see, have to arrange to go for an MRI scan when i'm 24 weeks so we can see for sure and discuss delivery and while we're there they're going to walk us round the intensive care baby unit, so scared about that but guess we should prepare ourselves as much as we can.
We got to have a chat with a paediatric surgeon who has done many CDH operations, he talked us through everything that could and would happen from the second Sunshine is born, from tubing him so that he can't cry as there's the risk of getting air into his stomach and risk of his lungs bleeding, i'm so scared of another 'silent' birth, with Nathan the silence was horrendous, even though this time we know it's for Sunshines own good, even though we won't get to see him until later it's going to be so hard, but we just want our little man to be ok. He also told us the Uk survival rates were 50% but at his hospital alone it's more like 80% which to us was great news even though there is the other 20% it means Sunshine has a good chance, even just a little chance would be enough, as Nathan never had a chance he wasn't going to survive no matter what any1 did. but obviously the more chance Sunshine has the better.

Then the 'good' ish news, the fast chromo results from the amnio were there, the 3 main chromo problems were clear, which was great to hear as we know 2 of them are compatible with life issues, but however there is a 'query' regarding the Y chromo, this is when we found out Sunshine was a boy as with everything happening we never thought to ask, it suddenly didn't matter anymore.

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